Compassionate Allowance - Neonatal Adrenoleukodystrophy
There’s nothing more crushing to a parent that learning that their child has a fatal, debilitating disease. Every minute with your child becomes priceless, knowing that you won’t be able to watch him or her grow to adulthood. On top of the emotional toll, having a child with a fatal disease can bring a huge financial burden on a family, especially if the child requires special nursing attention.